Narayan Seva Sansthan: Helping Polio Victims

Situated in the lake city of Udaipur, since its foundation on 23rd October, 1985, Narayan Seva Sansthan has been working for the “service of suffering humanity”. Since its inception, Narayan Seva has been rendering its services to physically, economically and socially needy people. The organization helps the physically challenged, especially the polio afflicted and those born with disabilities. The help is not only medical, but goes beyond it to ensure that the people are made self-dependent via employment.

Since 1985, over 95000 polio afflicted people have been able to stand on their legs after getting successfully operated under Sansthan’s move towards self-dependence of the handicapped. Besides free distribution of clothes, medicines, food grains etc. to the tribal in remote areas, it also provides free vocational training to the physically disabled and economically weaker sections of the society. It has provided facilities for the training of these people in wood craft, carpentry, black-smith trade, leather work etc. supplying the necessary tools and raw materials to begin with.

The organization has also been running an orphanage taking care of children who become orphan due to ‘Nata-Pratha’ – a social evil prevailing in this region of the country in which after the death of the husband, the wife goes away to stay with some other man leaving the children behind . Over 600 children have been taken care of and sent back to the main social stream.

As a part of its endeavour to make medical care available to poor patients at their door steps, the Sansthan maintains a mobile medical care unit. Equipped with all necessary modern facilities, the mobile medical unit is always kept ready to rush to any spot when urgent medical care is required. Apart from all of this, the Sansthan is also involved in promoting values of Indian culture as enshrined in some of the epics and scriptures. The Sansthan has been organizing expositions on Ramayana, Puranas etc. with the purpose of spreading the message of humanity.

Narayan Seva Sansthan has been creating success stories and looking after a section of the society that most often gets overlooked.
To know more about the organization visit: http://www.narayanseva.org/

This article has been contributed by Chandrika Maheshwari. Chandrika is a student in her 3rd year of engineering in BITS, Pilani and holds a vision to do something for the country and contribute in its development. Her interests include social entrepreneurship, traveling, reading and writing.

Interview: Ruma of Noida Deaf Society

Meet Anil kumar who has a hearing disability. He used to work in a papad factory earning Rs.1500 a month for a daily workload of 10 hours. Then he came to know about Noida Deaf Society and enrolled for their English course in the year 2007. Eventually he got placed in Leela Kempinski Hotels, Gurgaon much to his joy and satisfaction. “I have learnt to commit to my job from NDS, and the value of having a good job and a regular salary,” says Anil.

Noida Deaf Society was started in the year 2005 single-handedly by Ruma Roka and now this organization is impacting over 300 students through its various courses. Here is an interview of Ruma on NDS, her inspiration and the impact she is creating:

How did Noida Deaf Society start? What was the inspiration behind it?

Ruma: I always wanted to do something for the less privileged in our society. In 2004 I learnt the Indian Sign Language. This got me in touch with the deaf community and I started researching about the deaf, their issues and the needs. The more time I spent with the deaf, the more I realized the need to do something. There was no looking back from that point. I realized that there were complex issues facing the deaf in the country including lack of education facilities, lack of resources especially designed keeping the needs of the deaf in mind, no avenues for holistic development and so on. Most importantly there is no access to quality training leading to sustainable livelihood.

I found that in India deaf education was in a bad condition. Deaf students are often forced to speak and use of sign language is discouraged. I also found that since schools are not really preparing the deaf for a responsible and independent life, the deaf end up in menial jobs and get deeply frustrated.

To address some of these issues and to bring about a positive change in this marginalized community, I started an organization called Noida Deaf Society (NDS) in 2005. I started from a small two bed room flat belonging to my husband. I just had five students and I was the only trainer. Through word of mouth the organization started growing. We started teaching English using sign language – since we believe that if the deaf picked up English, they could communicate in the workplace with the written word and hence be employable in multiple professions. Thereafter we started training in basics of IT and subsequently expanded trainings to include Life Skills, Grooming, Desktop publishing and graphics and work ethics. When I started, I was the only trainer but today we are a strong team of 15 which includes 12 deaf trainers and support staff.

What are the projects NDS adopts? How does it go about executing them?
Ruma: Our goal is to enable the complete integration of the deaf into the mainstream through education and specialized vocational programs leading to gainful employment. At Noida Deaf Society we understand the constraints of the Deaf and focus on their abilities to bring out the best in them. We have used the visual medium of IT to enable learning. Training programs are conducted by Deaf trainers as we feel that they best understand the needs of the Deaf and also act as role models for the community. Training is conducted in Indian Sign Language using visual aids and multimedia based material. Our trainings have been developed based on market research and are job oriented in nature.

Training in Life Skills and Work Ethics is a key focus area towards preparing the youth for employment. Regular exposure to the industry is provided through guest lectures by professionals, industry visits and workshops. We are also actively engaging with the industry to build sensitivity and raise awareness about the Deaf through workshops, mentoring programs, collaborative industrial training, employee volunteering and sign language orientation. We have so far been able to employ over 170 youth in leading organizations in profiles such as Graphic Designing, Backend IT and Data Entry, Retail, Hospitality, Teaching, Export Houses, Production Units and so on.

Could you share with us some of the success stories of NDS?
Rumi:
Anil Kumar, whom you have already noted about, is one such story. The other is that of Rattan Kumar. Rattan joined the MS Office course at Noida Deaf Society in January 2009. Opportunity knocked when he was close to finishing his course in the form of a contract data entry job at Mobile Creches. They wanted a part time data entry operator. Rattan worked hard and managed well to switch between his roles of a student and of a data entry operator. After his contract got over he was placed in ITC Maurya in Delhi in August 2009. His performance there has been so good that ITC has asked for more candidates from NDS. He has truly been a role model for the deaf and has made us very proud. Despite of coming from a weak family background (separated parents) he has given the best of himself to society.

We have many such success stories put up on our website too.

What are your future plans with NDS?
Ruma:
Our student strength is increasing day by day and it is becoming difficult for us to operate from the current facilities. We would like to build a state of the art vocational training insitute for the Deaf, the only one of its kind in the country where we can offer training in multiple trades and enable the deaf to access employment. A permanent facility will also help us to reach out to the many Deaf in the country and enable them to lead meaningful lives. Introduction of new training programs like computer networking and hardware is also on the cards. Another thing that I would like to see happen in the near future is a digitized teaching & learning material for improving English literacy.

Do you have any volunteer or employment requirements that might interest our readers?
Ruma:
Yes we do have a vibrant volunteer program where people from all walks of life especially professionals are contibuting towards skill development of our students. We also have employee volunteering programs with many corporates including NIIT and Mphasis.

However, we first encourage people to learn Sign language as then they will be able to contribute in a more meaningful manner. We essentially need help in employment linkages, fundraising, specialized training in computer networking and hardware.

Here is a photograph of Ruma with the entire NDS family:

To know more about NDS and to go through their work, please visit their website: http://noidadeafsociety.net/

Mirakle Couriers: Career Haven for the Deaf

We hear a lot about corporate social responsibility where companies contribute to the welfare of the society. But here is an organization where social responsibility is not just a residue of its profits, but the core purpose that guides its existence. Mirakle Couriers was born with a business idea that will support the livelihood of deaf adults.

There is no charity here, it is business, it is employment for the deaf. Mirakle simply touched the biggest pain point in the lives of the disabled, their employment. Their talents are all hidden and forgotten. The possibility of them being able to do something is never given a thought and we have them excluded from the mainstream. Moved by this very stigma, Dhruv Lakra founded Mirakle Couriers and invested his trust on the abilities of the deaf.

Based out of Mumbai, this organization started off with just two deaf boys in their team. Now the team has grown to 35 boys and 15 girls. The boys are entrusted with the responsibility of delivering the couriers while the girls work at the office. The employees at Mirakle have come in from different backgrounds and have stories to share that will tear our hearts apart. Abusive families, exploiting work environments, seclusion and what not. But their lives have changed. They are today earning members of their families. They are respected, independent and they love the job they are doing.

Bhupesh, an employee at Mirakle who has suffered a horrific past says: “I asked a deaf friend if he could help me find a job. He took me to meet Dhruv. Now that I am at Mirakle, I can finally feed my brother and myself. I give thanks to my God everyday for this opportunity. I am the only deaf person in my whole village and I have no friends. Life is stressing there. Mirakle provides me with friends who are all deaf like me. I can finally talk to someone like me, share a joke and just enjoy life.”

The biggest success of Mirakle Couriers lies in being able to give a respectable livelihood to the deaf. Mirakle goes to schools for the deaf to hire its people. The word about the opportunity at Mirakle has spread among the deaf with more and more people coming to join in. This unique people force is bringing success to the business which in return is spreading silent smiles of happiness.

You could help Mirakle Couriers by urging your company to use the services of this novel initiative. Know more about them at http://www.miraklecouriers.com/. Also, read their blog http://miraklecouriers.wordpress.com/.

AVAZ Giving Voice to Children

Introducing ‘AVAZ’ – a product created by Invention Labs, Chennai. AVAZ provides a ‘voice’ to a non-verbal child with Cerebral Palsy, allowing him/her to communicate with friends, family and teachers. By enabling speech-impaired children to communicate easily, this device is helping them become much more independent and free from their existing barriers.

AVAZ The Product

AVAZ The product

Cerebral Palsy – The Problem

Cerebral palsy (CP) is a congenital condition in which the motor cortex of the brain is damaged. People with cerebral palsy are unable to achieve muscle control and coordination. Cerebral palsy is non-progressive, non-contagious and permanent. The incidence of Cerebral palsy is 2-2.5 persons per 1000 live births, and the estimated population of CP cases in India is approximately 25 lakhs (cited from publicly available information).
Approximately 40-55% of people with CP are affected in all muscles below the head (quadriplegia and diplegia). In most of these cases, these include the muscles that produce speech, and such persons are consequently non-verbal. In conjunction with their inability to move their hands or feet in a coordinated manner, this impairment means that they do not have access to any of the traditional ways of communication.

Most children with CP are of normal intelligence, and are handicapped in education and employment primarily due to their lack of communication abilities.

AVAZ

AVAZ is an Augmentative and Alternative Communication (AAC) device for children with Cerebral Palsy (CP). AVAZ is a portable speech synthesizer which can be controlled by gross motor movements of a child with CP, such as approximate movement of the head or of large muscle groups. These movements are captured by the use of a touch-screen or an external switch to allow the child to create text sentences on the device using predictive software, and this text is read out by the device. AVAZ is thus an artificial voice for the child.

How did AVAZ achieve this?

Invention Labs began engaging with IIT Madras and Vidya Sagar to develop commercially viable Voice Output Communication Aids in 2008. Sustained research and development on the device began in May 2008 in collaboration with Faculty of Electrical Engineering and Computer Sciences Departments at IIT Madras. Invention Labs received a grant of Rs 10 lakhs under the Technopreneur Promotion Programme (TePP) from the Department of Scientific and Industrial Research, Government of India, in February 2009, which was used to fund the development of AVAZ in part.

Invention Labs continuously engaged with Vidya Sagar’s teachers and students to validate the usability and impact of the prototypes of the device. After a couple of rounds of prototyping and based on feedback from children as well as teachers, the design was finalized, and the beta version of the device went into production. AVAZ was launched in February 2010 and has been warmly welcomed by the community of special educators as a step in the right direction.

The Details

AVAZ consists of two components – a wheelchair mountable speech synthesizer and text prediction software that runs on this synthesizer. The speech synthesizer has been designed to be usable by children with different abilities and has the following features:

  • Large 7” LCD display with Touchscreen
  • Speakers and Audio Jack – for voice output and audio prompts
  • USB port – to connect non-contact switches that get activated when they sense motion
  • Mono Jack port – to connect contact switches that get activated when pressed
  • Rechargeable battery (in-built)
  • Wheelchair mount (optional)

The text prediction software helps children do two things – creating sentences and speaking them out. Sentences are created in AVAZ using a technique called ‘scanning’. The user can select an option by pressing anywhere on the touchscreen or by using any contact or non-contact switch that is connected to the speech synthesizer. In order to speed up text creation, AVAZ features learning and prediction. It is able to remember sentences and words used by the child in the past, and it accelerates the entry of commonly used templates. AVAZ currently supports nearly 10000 words in the English language, and many more can be added by the child if needed.

The text prediction software comes with many options to enable children to customize the device to suit their needs:
a. Scan speed can be modified to suit the child’s comfort
b. Audio mode is available to help visually impaired children hear the current position of the highlight
c. New words can be added by the user to the in-built dictionary of AVAZ.
d. Frequently used sentences can be added as a ‘template’ for quick retrieval

Benefits to the Children

Avaz Used by a Child
AVAZ provides a ‘voice’ to a non-verbal child with Cerebral Palsy, allowing him/her to communicate with friends, family and teachers.

  • AVAZ enables these children to express themselves – children can convey virtually any thought in their minds by creating messages dynamically and using the speech synthesizer to ‘speak’.
  • AVAZ helps them become independent – children can interact with the device based on their ability. A number of interaction switches, contact as well as non-contact, are compatible with AVAZ and can be used to operate the device.
  • AVAZ allows them to communicate easily – the software adapts to the child’s vocabulary, using words that are most frequently used by him/her as well as allowing the child to create ‘template’ messages for daily use.
  • AVAZ is also portable, allowing the child to carry it around and even mount it on a wheelchair.

Future Thoughts

Communication plays a very important role in our lives and enables people to make friends, influence others and interact with their communities in meaningful ways. Our goal is to enable non-verbal persons with different abilities to overcome the barriers in communication that they face with the help of assistive devices like AVAZ. Just like a person with mild visual impairment wears spectacles to correct her/his vision, we envision that most non-verbal persons will have access to and use a portable assistive device like AVAZ to ‘speak’ and communicate.
Invention Labs plans to leverage the many features of AVAZ to extend its use to an educational environment, where the children could be taught using AVAZ. Special-purpose applications could also be built that work in specific employment opportunities to help such children take up gainful employment when they graduate. AVAZ could also be interfaced to a PC or a mobile phone in order for non-verbal CP children to use these devices.
Since a child can interact with AVAZ in multiple ways, the same principles used by a child with CP to communicate can be extended to help other non-verbal children. Children with lower levels of CP, Autistic children, children with learning disabilities and children with multiple disabilities could all benefit from having an assistive device that suits their needs. With the appropriate application, AVAZ could potentially be useful by adults who have been temporarily or permanently impaired by accident, stroke, disease or even old age.

About Invention Labs

Invention Labs is a startup based out of Chennai and incubated at IIT Madras. Voted one of the hottest startups in India by Business Today in 2009, Invention Labs was founded by alumni of IIT Madras. With a diversity of experience gained from working for multinational corporations at different locations worldwide, the founding members of Invention Labs returned to India in 2007 to set up Invention Labs as an organization that invents products for the unmet needs of the Indian consumer.
Invention Labs Team

Read more about Avaz (and watch their video) here: http://www.inventionlabs.in/avaz/aboutAVAZ.html

Braille Without Borders: IISE

In the midst of the backwaters of Kerala, when you visit IISE (International Institute Of Social Entrepreneurship) you are sure that it is a perfect setting anyone could have imagined for an institute like that. Far from rat race of the cities, situated in Kochivelli, IISE campus is a perfect amalgamation of modernization, simplicity and technicality.

IISE was established as a part of BWB (Braille Without Borders) with an initial vision of finding visually-challenged children with a passion to grow and give them the tools to function independently in society. Sabriye Tenberken, the founder BWB, lost her vision at the age of 12. She went from Germany to Tibet after hearing the terrible circumstances in which the visually-challenged children there lived. She always felt stifled by the constraints on the visually-impaired in Germany and hence decided to work with others who were facing the same pressures but under much more extreme conditions. Sabriye met Paul Kronenberg while she was in Tibet who later went on to create BWB together.

The IISE Campus View

The IISE Campus View

It began as an initiative to create Tibetan Braille and grew into a printing press for Tibetan Braille literature. Then a preparatory school for the primary education of blind children was established. To realize the idea of the blind as an independent section of the society, they opened a vocational training school which provided them employment skills and encouraged entrepreneurship. This included things like cheese farming, animal husbandry, gardening, theatre and painting.

After establishing the centre in Tibet, their objective evolved from empowering the visually-impaired to creating leaders within any marginalized group that would act as a catalyst for change. Hence they moved to this idyllic location in Kerala and started IISE.

BWB runs almost wholly on donations and grants. The ethos of the organization is to help as many people as rapidly as possible, and BWB believes that an open-source model is most effective. Naturally, there is some risk in relying on the goodwill of others to sustain it, so BWB focuses on maximizing its use of capital.

The impact that BWB has had on people can be seen on social, economic as well as the political front. Empowering blind people helps not only themselves but also every individual who interacts with them; the organization that employs them. BWB is demonstrating that not only can blind people be contribute significantly to the society, that they can infact be leaders.

Talking about the economic impact, tooling up 161 million blind people provides as an invaluable work resource. These marginalized groups are able to create assets and jobs as much as anyone else.

For more details on BWB/IISE, check out http://staging.bwb-iise.org/

To know more about Sabriye, http://en.wikipedia.org/wiki/Sabriye_Tenberken

This article has been contributed by Chandrika Maheshwari. Chandrika is a student in her 3rd year of engineering in BITS, Pilani and holds a vision to do something for the country and contribute in its development. Her interests include social entrepreneurship, traveling, reading and writing.
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Rose Computer Academy

Logo_Rose_Academy

Amit Kataria comes from a humble background. Brought up in Choma village, Gurgaon, Haryana by his father, a farmer and mother, a housewife, he always dreamt of making a change in the society. Never having let his walking disability come in the way of his dreams, today he has successfully transformed the lives of many in his village by imparting computer literacy and in the process, setting a precedence worth following.

Amit’s journey began in 2007, “I completed my primary education in Choma but beyond that level of education, there was no opportunity there so I decided to study at a school in West Patel Nagar and passed my tenth and twelfth class there. In my final year, I came back to my village in 2006. I realized that most villagers owned land and money but they had little or no literacy especially in computing. They were ignorant of the need for computer skills. I found that this was the biggest need of my village and its future generations. That was when I decided to start a computer learning institute in my area.”

Students in Rose Computer Academy

Students in Rose Computer Academy

With a vision to spread computer literacy throughout India, especially in rural areas, Amit started his venture ROSE Computer Academy in 2007, when he was only nineteen years of age. Having learnt computers, he realized its potential in making his community independent and in the long run, in contributing to strengthening of the economy and the nation at large. At no point of time did Amit lose heart in the face of difficulties even when finances were few and far between, he persisted. “I still remember September 7, 2005, the day when I had earned my first hundred rupees. When I set out to start my institute, I had twenty-three thousand rupees of savings. My maternal uncle agreed to lend me one lakh rupees and I could start my computer lab.”

Amit’s academy has so far trained 300 students from his village, offering courses such as Basic computing, Java, Graphic Designing, Tally, C++ and many others. His is the only academy in Palam Vihar, Gurgaon which offers different kinds of computer courses under one roof, working 18 hours a day. Some of his students have also gone ahead and opened their own enterprises, while others have taken up jobs. Some start working at the academy itself.

One of the students at ROSE Academy is seventeen year old Ashok Silwal. Born in a small village of Nepal, Ashok came to India in 2007. His father is a bus driver at a school in Gurgaon and had no money to support his education so he went back to Nepal and enrolled for a correspondence course in India. “In Gurgaon, my father met Amit Kataria sir. Sir needed an office boy, so I started working with him at the Academy. I soon developed an interest in learning computers. I completed a Certificate Course in Computer Application and Desk Top Publishing and also completed my schooling here. Then I started teaching at the ROSE Academy and earned salary also. Now I am able to contribute to my family too,” Ashok smiles, gleaming with pride.

ROSE COMPUTER ACADEMY
(Behind Sangam Sweets) H. Block Mkt. P.O.
Palam Vihar, Gurgaon – 122017
Haryana
INDIA
Landline: 91-124-4387843
Mobile: 91-9868573124 / 91-9312605558
Website – http://www.rosecomputeracademy.com/index.aspx

ROSE Academy has provided computer skills and employment opportunity to many like Ashok. Besides computer education, ROSE Academy also provides learning assistance to students in their studies, considerably brining down the examination failure rate. As Amit puts it, “ROSE academy is like the rose flower that spreads its fragrance everywhere.” True to its name, the work and virtues of the Academy are an inspiration by every measure!

Udayan Care

udayan_logoShivam Udayan is an intelligent kid, quick to grasp new things. Now he has started learning horse riding at school. Ajay Udayan has been the head boy of his class since the last two months, he is very interested in sports and extracurricular activites.He also took part in Ramayana sessions in school. These are just two stories out of the 180 kids in Udayan care, 11 of whom are in boy’s NOIDA home There kids are mostly orphan or from abusive, destitute and dysfunctional backgrounds. The children over here live in well furnished, modern homes, with all the facilities that one would see in an upper middle class family. Children in the Noida home go to schools such as Rockwood and Assisi Convent.

Udayan care is an NGO started in 1994 by Dr. (Mrs.) Kiran Modi. Headquartered in Delhi, the organisation is working towards regenerating the lives of the disadvantaged children and women. They are committed to their aim of sustainable social development through various programs that include :

Udayan Ghars Shelter homes based on the Group Foster Care model developed
by the organisation with the sole aim of providing a family like environment for oprhaned,abused kids so as to promote social integration, brotherhood and providing the best possible education . Each Udayan Ghar is run by lifetime a volunteer mentor parent, the home on an average has about 15 children. Ghars are located in popular neighbourhoods and children attend private, English medium schools, and participate in vocational training and mental health programmes . At present they have twelve homes in and around Delhi/NCR.

Udayan Shalini Fellowship A distinctive higher education and vocational training scholarship, that works towards the transformation of disadvantaged girls into educated, independent and confident citizens like 22 year old Smita Verma who moved her family out of a one tenement flat in the congested bylanes of Old Delhi’s Chandi Chowk to an independent house in a decent location. She became the first engineer in her family , all thanks to the Udayan Shalini fellowship.

Outreach programme Started in 2004 to provide financial assistance to the children of HIV infected parents so that they are able to receive better nutrition, schooling and prospects of a better future. A long term relationship is established with the children through workshops, counsellings and home visits. In the eventual loss of parents, children are assured with Udayan Ghars.

Sugam Vedashram Project Nagapattinam district in Tamil Nadu was the worst affected by the Tsunami that rocked the shores of the country. Of the total district population of 1.4 million, approx. 197,000 were directly affected and 6051 were killed.Gasunie Engineering Technology (GET), Netherlands decided to ameliorate the suffering fisherman and develop a proper rehabilitation plan.

Finally three villages namely Chinnurpet, Chandrapadi and Talampettai were chosen and Sugam Vedashram Project was started in collaboration with Bandhua Mukti Morcha and GET. The aim of the project is to provide an educational and training platform for the devastated fishermen community.
At present they are seeking funds for the construction of the Center.

Udayancare is currently in the process of starting a hostel for underprivileged women. The organisation is accredited by Give India and Credibility Alliance.
Here are some wonderful photographs of the children at Udayan Care:

udayan image

Children at the Winter Camp in Jagshanti Udayan Ghar, NOIDA

udayan-3

udayan-4

Contact Details

Please visit http://www.udayancare.org/ to know more.
Blog : http://www.udayancareblog.blogspot.com/
Twitter : http://twitter.com/udayancare

This article has been written by Rahul Anand, an IT consultant , entrepreneur and social activist living in Delhi. He has been associated with Udayan care as a volunteer since the last two years; has started a program with cafindia (charity aid foundation) by the name of 100ruppeeclub. Also, his venture www.simplypoet.com is the world’s first multi lingual poetry portal

Seek A Miracle Ataxia Group – SAMAG

samag ataxia group

SAMAG is a registered, Non-Profit support group which is relentlessly working for the cause of “Ataxia” and “Muscular Dystrophies”- a set of Neuro Muscular degenerative disorders resulting in body imbalance and heart problems which gradually worsens until the victim becomes totally incapacitated. At present, there is no known cure in this world for this disorder.

SAMAG was founded by Chandu George in 2006 in Hyderabad, India with a vision to spread awareness about Ataxia and to provide information and counseling to families coping with Ataxia. Journey has been difficult for this budding organization but thanks to the positive efforts of volunteers led by Chandu, SAMAG has slowly and steadily created awareness on Ataxia and has successfully paved the way to create a forum for Ataxians thus bringing in hope and voice for Ataxians in India.

Chandu George, belonging to a middle class family in Hyderabad, has grown from being a shy and introvert guy into a confident personality leading the way for better life for Ataxians. Diagnosed with Friedreich’s ataxia from the tender age of 14, Chandu realized very early that living with Ataxia was a part of his life and a reality. Over the years he has accepted this hard bitter truth in life and maintaining an ever optimistic attitude, he has strived relentlessly in building SAMAG, an effort to better the lives of families coping with this rare condition.

Chandu George, founder of SAMAG, was diagnosed with Frederick Ataxia at the young age of 14. His amazing sense of optimism has led to the creation of SAMAG.

Completing 4 years of operation, SAMAG has been successful in getting attention from local organizations and volunteers who have come forward to help in its efforts by tree plantations, donation of wheelchairs, organizing fundraising activities etc. SAMAG has also been featured in local channels like Saakshi TV and TV9 along with getting published in local newspapers. It continues to act as an advocacy and lobby group for Ataxians and continues to prepare volunteers who can contribute their time and energy for the welfare of Ataxia patients and help them in obtaining essential commodities like wheelchairs, walkers, medicine etc.

However, despite all its achievements, SAMAG is still in need of funds as well as volunteers to realize many of the pending projects. One such project is SAMAG Rehabilitation Center. SAMAG aspires to build a disabled friendly rehabilitation centre where it can bring the Ataxian families together along with care givers and volunteers. Chandu truly believes that spending a weeks time in a direct interactive environment , Ataxian families can share their concerns, reduce their worries and also develop a feeling of ” togetherness” which can bring them new hope in life.

This project is yet to be realized due to the lack of funds and resources.

Another project is to open a branch of SAMAG in Bangalore which is again not been realized because of lack of volunteers and like-minded people.

I take this opportunity to remind The Better India readers that SAMAG is a registered non-profit support group which entirely depends upon donation, charity, grants and fund raising events. It needs helping hands to support the cause and funds to implement projects. Even a little help can make a huge difference.

So, please feel free to contact Chandu at sam_ataxiaindia[at]yahoo[dot]com in order to find out ways of help, how to become a volunteer, how to conduct fund-raising activities, sponsor a victim or make a donation.

Please visit www.samataxiagroup.org to know more.

Read more about Ataxis here: Ataxia on Wikipedia

This article has been written and contributed to The Better India by Ashwini Rao.

Mitra Jyothi – Changing the lives of visually impaired

madhu singhalIn our busy lives where our abilities are taken for granted, we forget that living along with us are challenged people who have special needs. Who could better understand the needs of the visually challenged than someone who has suffered it herself? Madhu Singhal is visually impaired by birth. Born into an upper middle class family in Haryana, Madhu had the affluence to lead a comfortable life. But she chose not to be laid back and wanted to do something on her own.

After completing her MA in Hindustani Classical Vocal Music, Madhu came down to Bangalore to undergo specialized training in communication and counseling. To her surprise and much difficulty, she found that there was very little support for her learning needs. In the North, audio recordings of text books were made available for students like her, but here in Bangalore Madhu couldn’t find any such help. Fighting this difficulty she completed her studies and got out only to find that it was extremely difficult for her to get a job. This is when Madhu decided that no one else should suffer what she suffered. And Mitra Jyothi was conceived.

Mitra Jyothi is aimed at empowering the visually impaired by supporting their educational needs, finding suitable jobscassettes and making them independent enough to take charge of their lives. The organization’s most popular initiative is its Talking Book Library. Text books and books for general reading are given a voice by volunteers, and cassettes and CDs are recorded for circulation. Over 22,000 cassettes of more than 2000 books have been recorded till date. Mitra Jyothi set up its own recording studio to provide this service professionally. Notably, Mitra Jyothi’s effort in this front was the first of its kind in Karnataka and over 5000 people have benefited from the library.

The organization is also extensively involved in Braille transcription and providing computer education to the visually impaired. Mitra Jyothi runs a full-fledged job placement cell for its members, a service that has helped its members find suitable jobs in corporates and manufacturing units. Another admirable service is that the organization runs special courses for women to impart independent living skills.

Mitra Jyothi has been serving the needs of the visually challenged for over two decades now. It has extended its services to Kerala, Andhra and Tamil Nadu. Madhu Singhal has nurtured the organization with her selfless commitment that grew beyond her impairments.  Madhu lives independent, travels abroad on her own, spearheads an organization and chairs important positions in various social service organizations – a true role model. What she has achieved can be made possible for more visually challenged people. Help spread the cause.

Visit http://www.mitrajyothi.org/

MESH – Maximising Employment to Serve the Handicapped

Mrs. Savitri

Mrs. Savitri of Sangli

Mrs. Savitri is a weaver at the Physically Handicapped Training and Rehabilitation Centre in Sangli, Maharashtra suffers from leprosy but is learning to make scarves using wool for the first time.

Mr. Anbazhgan is a disabled wood-cutter, part of The Helen Keller wood carving group in Kalakurchi in Tamil Nadu, who is learning about the problems he could face with the use of an unfamiliar wood for an international client.

Mrs. Kankadurga works at Bethany Products, Bethany Leprosy Colony in Andhra Pradesh to create bed webbing that is used in the production of strong and beautiful bags.

Tarak Nath Roy of Susunia

Tarak Nath Roy of Susunia

Mr. Tarak Nath Roy of Susunia, West Bengal, is a gifted stone carver but disabled by polio.

The lives of these four artisans and several hundreds like them have been changed by an organization called MESH (Maximizing Employment to Serve the Handicapped). Earlier they were all being paid half of what their products were worth because of the presence of middle-men. But now, due to the efforts of a MESH, these artisans are able to market their wares directly and receive their due credit.

Mission and Activities:

MESH aims at providing opportunities for social and economic development to disabled and leprosy-affected people. It achieves this by acting as an intermediary between the disabled artisans and the market place. In effect they secure orders from national and international buyers, forward those orders to the skilled artisans, train and guide the artisans in fulfilling these orders, and promote fair wages among the artisans.

In addition to this, MESH helps the artisans by providing access to a host of design and product development ideas from its own Design Studio in order to keep them updated on the latest market trends. The organization helps add value to the artisans’ products by telling their stories. It also provides training in best business practices and helps the artisans secure 50% advance payment if required so that they can buy their raw materials without taking loans.

Products and Contact Information:

Their product catalogue includes shoulder bags, table mats, scarves, bedcovers, tablecloths, office stationery, toys, cards in a large variety of shapes, sizes, designs and materials to keep up with the latest trends and cater to various needs. All of these are available at their stores at the following locations in India:

MESH
5, Local Shopping Centre,
Uday Park,
New Delhi 110 049
Tel. +91 11 26965039/26568048
email: mesh@del6.vsnl.net.in

MESH
Shop No. 8,
NTR Gardens
Necklace Road,
Hyderabad
Tel. +91 9703879557

Besides this, MESH also has retail outlets in Britain, Germany, Sweden, USA and some other locations. Check their website for more details.

MESH has truly helped in filtering out the middle-men and enabled the handicapped artisans of India to earn their due.

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